Hearing

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Brielle’s favorite band. Yes, I do see the parental advisory, don’t judge me. Picture credit.

Brielle’s hearing has finished developing and we’ve noticed! She’s picking up sound that is much quieter now as well as having more diverse music preferences. I have no explanation for this, but when I ask her to move (so that David and I can see her move), she moves! She’ll give big kicks and punches! Last night Brielle and I were getting frustrated with her Daddy because he kept falling asleep when she’d show off! She was working so hard to show him her movements. He apologized and gave her lots of kisses though, that made her happy. She started dancing after that, I think she forgave him.

Brielle’s 27 Week Ultrasound Pictures

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These are her little feet! Aren’t they the cutest?
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These are Brielle’s legs and feet.
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This is Brielle’s umbilical cord and abdomen. The duck beak looking thing on the left is her umbilical cord.
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This is Brielle’s heart. The dark part in the middle of the blob is her heart.
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Side view with her head instead of her legs. Face is really blurry. Top blob is a picture of her arm that is kind of cut in half. It’s a view of her muscle and bone inside the middle of her arm.

Brielle’s 27 Week Check Up

We went to the doctor Friday. We received some bad, but not terrible news. My amniotic fluid is a little high, it’s still within a healthy range, but it’s creeping up there. High levels are 25 cm, normal is 10 cm, mine are at 20.85. That’s 4 inches larger than normal and 1-2 pounds heavier than normal (I think I have that right). Brielle is swallowing, but just not enough. We really need prayers about this. If I go above 25 cm I may go into preterm labor, be put on medication to stop contractions, and go on bed rest. If I get into 40-50 cm range Dr. B will have to drain off the excess fluid because I’ll have trouble breathing. Think an extra 8-10 pounds with a 4ish pound baby at 33 weeks. This isn’t a good solution, because the fluid will build right back up within a week and it puts Brielle at risk for preterm labor. So prayers please!

It was our first visit officially with SeeBaby Midwifery, the practice that Dr. Bootstaylor runs. It’s incredibly common in almost every country besides the US, to have midwives attend the birth at the hospital and only call in an OB GYN when forceps, vacuum, or cesarean are required. His practice follows that model, instead of the typical American model. So we will see a midwife for our general appointments and Dr. Bootstaylor after ultrasounds and for specialty check ups.

The technician took her time with the ultrasound and did her best to get the best pictures she could. However, Brielle is a wiggle worm! And would not stay still for clear pictures. So we were unable to get a view of her head since she had it hidden on my cervix. We were able to get pictures of the rest of her though. She’s growing just like she should. Her heart and lungs are healthy, her weight is on target, and she’s a wiggle worm! She weighs about two pounds right now and is the cutest thing!

Mom and Dad bought us an elephant heartbeat bear to record Brielle’s heartbeat in. They bought an elephant since she was going to the zoo to meet an elephant. So Brielle’s stuffed animal will be an elephant. The technician got a recording of her heartbeat, but of course Brielle would not stay still and moved in the middle of the recording. David and I liked that she did that, it captures who she is, and we’ll have that memory forever.

This video from the ultrasound captures Brielle moving around. She’s like this just about everyday. She’s a happy baby and loves to move her legs and arch her back. She also likes to keep her hands around her face. One hand fisted next to her mouth and the other near her brow, rubbing her face. She gets this from me. I sucked my thumb for forever, and even still sleep with my hands around my face. I also can’t sit still, ever. The way she’s moving in this video reminds me of my Uncle Scott Wolford when he was a young boy. He was kind of wild. Brielle is very much a Wolford.

Resources for Friends & Family

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I wanted to share this link with family and friends. It’s a resource for family and friends affected by anencephaly. I know that a lot of times no one knows what to say or do and David and I don’t have the strength to help others while we go through this ourselves. So maybe this will be of some help to our family and friends as we all go through this.

http://www.anencephalie-info.org/e/family.php

Spina Bifida & Anencephaly

LucaHill
You can visit them here.

Sharing this from Luca Hill’s FB page, another sweet boy lost to anencephaly. Spina bifida and anencephaly are both neural tube defects.

DID YOU KNOW?

Before 1960 the survival rate for all forms of Spina Bifida was 10-12%. Doctors were certain of mental retardation and that all babies with Spina Bifida had an unacceptable quality of life. (NCBI.NIM.NIH.GOV) Doctors refused to treat a baby that was diagnosed with Spina Bifida.

Sound familiar?

Because of a strong push in medical equality, surgery within the first 48 hours of delivery, and developments in medical technology (shunt, fetal surgery) 91% of babies born with Spina Bifida live WELL past their first year of LIFE and live a life full of joy, happiness, and purpose. (http://www.spinabifidamoms.com/english/myths.html)

So…Why not ours?

Check out this little ball of sunshine, Evie Grace, LIVING with Spina Bifida and bringing so much sassiness and silliness to those who adore her.https://www.facebook.com/EviesWarriors?fref=ts