A Donation To March Of Dimes For Brielle’s Birthday

logo2
credit

David and I chose to use money we would have spent on Brielle’s birthday gifts this year, to instead give to the March Of Dimes foundation. We chose this because anencephaly is one of many birth defects and we felt that this year, this organization was the best way to honor Brielle.

You can read about their birth defects research here.

David and I encourage you to donate in memory of Brielle or to spread awareness of anencephaly and other birth defects with your friends and family. No one should lose a child and David and I want to be a force of change for this.

You can donate here.

You can get involved here.

A Mother’s Love

When we first received Brielle’s diagnosis and I began to look at images of anencephalic babies, I was scared. Babies with anencephaly are portrayed as monsters or frog like. They are displayed in graphic clinical settings. A google search of an anencephalic baby will leave you disgusted and horrified. And I was scared that maybe I wouldn’t love Brielle or I’d think she was ugly. Will anyone love my baby? The whole situation was terrifying and I had no idea what I was getting myself into.
 
I am a part of an anencephaly support group, I have been since Brielle was diagnosed. And fellow mothers share images of their sweet anen babies. In some of the pictures, the baby has passed and is lovingly cuddled or swaddled in special things just for that baby. Some pictures the baby is smiling, giggling, blowing bubbles, they’re happy, loved. It’s beautiful.
 
I find myself completely heartbroken and in love with everyone of these babies. They’re so perfect and these babies are so loved. Each one, has a story like Brielle’s, a story of love and hope, and trust in God. Each is special. They each had their own personalities, likes and dislikes. A lot of them were active and silly. Each one deserved a future.
 
And so it’s heartbreaking, because I know the pain the parents feel. I know how it hurts to guide your child into death. And it’s heartbreaking, because each baby I see reminds me that another will come and another will die. Each baby I see reminds me of the horrors I saw in the medical community regarding anencephaly. Each baby reminds me of the ignorance of our society, how cruel people can be towards these sweet innocent babies. And it shouldn’t be that way.
 
I can’t imagine a more purely beautiful baby. I need to make a difference for these babies, they deserve it. Brielle had a beautiful birth and loving support from See Baby and Dekalb Medical. The care and love we received is incredibly rare and it should be standard. These babies deserve to be valued and respected. They deserve to be loved by everyone, not just their parents.
 
I know now that I had nothing to worry about. I still can’t get over how perfect and beautiful Brielle was and is. I am so proud of her and I just want to show everyone how cute she was. Brielle, David, and I were blessed with incredible amounts of love and kindness. We’ve been (happily) overwhelmed and I am so grateful. I don’t know how yet, but I will find a way to share Brielle’s story and the love that you all shared with us. Brielle’s life is a story of hope and love, even in the darkest times, and it’s proof of how amazing anencephalic babies are and everyone needs to know how special they are.
97da07ebe69a9f7dfc2b718fde45c415

Strength

Strongest

I think what most people say to me is that I am strong, “The strongest person they know.” And I don’t understand this. I don’t feel exceptionally strong. I feel quite average.

I feel like my “strength” is easily explained. I’m strong because I have no choice. We all face difficult times as we raise our children, each person has a different circumstance that calls them to do what they have to for their baby (no matter how old). My challenge didn’t happen in Brielle’s teens. It didn’t happen as a child. As an adult after a crisis. My time to step up as a parent and mother happened in Brielle’s earliest days. And maybe this is what people find admirable. But really, it is no different.

Brielle needed me to love her. She needed me to protect her and give her the best life she could have. What else was I to do? I could have aborted her, but would you abort your teenage daughter struggling with depression? Your child recently diagnosed with autism? Your grown son who was just diagnosed with cancer? No, you wouldn’t. You may get frustrated. You may not know what to do, but you would do your best for your baby. All I did was the best I could for Brielle. And so I don’t feel exceptionally strong, I just feel like a mother. A mother that was faced with difficult circumstances. And I did my job. I did my best.

Maybe it was that I had the choice. I could have aborted Brielle. Maybe not taking the option is what people find so amazing. As if it was an out, an easy solution to a horrific tragedy. But it’s not an out. It’s not any easier. There’s an entire support group filled with bitter mothers who aborted their babies with anencephaly, hoping it would be an easy out, only to find it wasn’t. There’s no taking back an abortion. There’s nothing you can tell yourself to fill that void. The void of regret.

I am future oriented. What I mean by that, is that I spend most of my time in the future. I plan, think, and dream of tomorrow and the days to come. And I know myself very well. I knew who I would be if I aborted Brielle. The draw of a new healthy baby a few months after Brielle was aborted was appealing. But looking down that road I knew it would tear me to pieces. I’d destroy myself with regret and agony. I would live a life violating my conscious with no way to correct the hole in my heart.

I’m not here to start an anti abortion campaign. That’s too political and I don’t want to mar Brielle’s legacy with politics. But I do want people to understand that I did take the easy out. I knew which of the two options would be the most difficult to live with and I chose the easiest one. I chose to love Brielle. And it wasn’t hard. It’s not hard. I miss Brielle so much. But I get to miss her. I have memories of her. I met her, held her, told her I loved her. None of those things are hard. They don’t require strength. They just require a heart and we all have one of those.

When I go to bed at night, I’ll hold Brielle, sob through “I’ll Love you Forever,” tell her goodnight and go to sleep. And I sleep peacefully. I ache. But my dreams aren’t sad. I am not haunted by worry. By the fear that I made a mistake. By guilt over a new pregnancy that I chose to replace the anencephalic baby I had.

If I had chosen the “easy” option everyone thinks abortion is, I would spend the rest of my life filled with a horrific ache. And a guilt that no one could imagine. I would never have forgiven myself. That kind of pain requires super human strength. And it is not something I am strong enough to endure. I am in awe of those that carry on, silently grieving their loss. A loss that they cannot speak to anyone about. A loss that haunts them. The mother’s who chose the path that I did not deserve our love, support, mercy, and encouragement. They carry a burden that is unimaginable.

Antidepressants & Birth Defects

sonogram-mother
Solid information on the risks of medications during pregnancy is often hard to come by. Article here.

If you’re taking an antidepressant and are of childbearing age this post is for you. I really don’t want anyone else to have to deal with the loss of their child, especially if it’s preventable.

“The analysis did find an association between birth defects and the antidepressants fluoxetine (Prozac) or paroxetine (Paxil). That included heart defects, abdominal wall defects, and missing brain and skull defects with paroxetine, and heart wall defects and irregular skull shape with fluoxetine. The relative risk increased 2 to 3.5 times, depending on the defect and the medication.”