grief

Trusting God Through the Pain

~ lovingbrielle ~ Leave a comment

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When I found out I was pregnant, I was beyond excited. Not just for the obvious reasons. Last Thanksgiving we got the call that my Papa’s cancer had moved to his brain and was quickly growing and he would have to be put on hospice. A year ago today, my Dad and I drove to Arkansas to help take care of him. For the next month my family helped take care of him. It was a very difficult December, to say the least, and a couple of days after we had our Christmas with him, he passed away. I wasn’t looking forward to my first Christmas without my Papa, but I was going to have a sweet new baby for Christmas. God had blessed me with a special gift that I’d treasure, that would bring joy to not only me, but my family as well for Christmas.

One of my first thoughts when I found out Brielle had anencephaly was, “What kind of sick joke is this?” To take my Papa and my daughter away from me within a year of each other, on Christmas? What kind of sick God does something like that? I was angry, but mostly deeply, maddeningly hurt. I’m still not sure why God gave us a baby on the first try, that would be born around the holidays, and then die. I hurt, but that anger and hurt aren’t at or from God anymore.

I have a lot of confusion, one day I’ll come to terms with everything. For now, I feel like an open bursting wound. And I hate it. I hate that this is happening now, at Christmas, one of my favorite times of the year. I love Christmas and this is too much.

While I hate all this pain, I’m not going to let it consume me. We get to choose how we handle what the world throws at us. We don’t get to choose what happens in our life, but our attitude we do get to control. David and I won’t be miserable, we’re going to grieve, but we’re not going to live in darkness.

This weekend is David’s birthday. We’re going to see The Nutcracker, take a Christmas historic home tour in Marietta, take the dogs to the farmers market in the square. I’m going to wear myself out and we’ll end up watching a funny movie to distract us from the grief of watching families with young children.

We’ll lean on each other and lift the other up when we’re too deep in grief. We’ll think about how happy Brielle is. We’ll remind each other that we’re not grieving Brielle’s fate, we’re grieving our own. The loss of a perfect baby that was too good for our world. We’ll have a bittersweet weekend.

I’ve said this over and over again, but I cannot stress it enough, the loss of Brielle is horrific, but her life was not. We crammed a lifetime into her ten months here with us. She was the greatest light we ever knew, she brought more joy into this world than we could ever imagine. I’m not going to let that be overshadowed by my pain. I don’t know God’s plan, but I know her story isn’t over. I’m just along for the ride, and I’ll constantly seek out ways to honor Brielle’s legacy. She’s too wonderful not to.

Life After Death

~ lovingbrielle ~ Leave a comment

We brought Brielle home yesterday (we put her ashes in a soft white teddy bear, I’ll post about that later). And I spent quite a bit of the day wondering what happens now. I don’t mean for my life or David’s lives. But what happens in Brielle’s world? What does she know? Of course, I fully believe she is in heaven. I know that much. But then that’s it. And no one has the answers of what happens next, what life is like after death.

So I wonder. Time could be different there, are years more like moments for her now? When David and I come to be with her will it be as if only a few moments passed? Will she really not know a world without us at all? This is a comforting thought, she’ll never have to miss us and we can pick up where we left off. But then it’s not comforting at the same time. I don’t want her life to stand still, I want her to be free to do whatever she wants to do. I want her to be more, she was such a lively wonderful baby girl, she should have the opportunity to do more.

So is she having a whole lifetime of fun and adventure? Is she seeing and exploring things? Meeting new people, playing with her deceased family? I know they would take good care of her. Is time faster, more fluid? I have no idea. But if time isn’t slower, then what? What will it be like for her while we are away?

When I talk to her can she hear me? I know a lot of people believe this, but really, none of us know. So if she can hear me, great, I’ll talk to her all the time! But if she can’t I’m just a crazy woman talking to the air.

Can she see us? If we take her on adventures still, will she see them? Will she know we did those things for her? Will she know how much we miss her? I know she knows we miss her, but can she see how much? Do I want her to see that? Do I want her to see me grieve for her? Not really. She hated it when I cried.

Is some part of her still connected to her body? If I tote around her ashes in her teddy bear (which I’ve dressed in one of her onesies), talk to her, sing to her, read books to her, will she know? Will it make a difference if it’s with her ashes or not?

How does this part of death work? What do I need to do to take care of her? Nobody knows.

All of these questions, I feel, are critical to how I learn to live again. I need to know how to mother her still, I need to come to terms with a pattern, a way to grieve her. To show her I love her and respect her life and legacy. And I’m not sure how to do that.

Do I swaddle her cremation urn bear thing, dress it in some of her clothes, read her books to it? Do I leave the bear in her closet or her bassinet? Do I take the bear with me on vacation? What do I do with this little piece of her, her “suit”, as David calls her ashes. I don’t know. I don’t know what to do. When does grief become certifiable? Nothing feels right, it all feels terribly wrong. It is terribly wrong. And this is where I am, in this horrible world, trying to figure out how to love Brielle who is a world away.

One Week Since Brielle’s Birth

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Thursday, November 19, 2015 was one week since Brielle was born. It’s hard to believe that she would be a week old already. In some ways it feels like I just had her and in other ways it feels like it’s been years and years since I was holding her in my arms. Today was one of those days where I had imagined doing things with her and I spent a lot of time today wondering what she would look like now. How would I feel physically today if she were here? How much more exhausted would I be and would I even care or notice? How many poopie diapers would she have had by now? It’s the little things that drive everyone else crazy that I spent the day wondering about.

I told David that I feel a bit out of place. I’m a Mommy, but I don’t have a baby to hold. Our lives have reverted back to just me and David again. We won’t need a babysitter, we won’t be drowning in baby things, we can go on vacation. I can buy myself expensive things and not feel guilty. I’d rather have poopie diapers. I am empty. My arms are empty, my womb is empty, and my heart is empty. I miss my little girl, my joy.

Today wasn’t all sad though, and I am very, very grateful for that. Kelle S. and Susan V. flew in for the day from Texas to check on me. They won’t be able to make it to the funeral, but still wanted to see us. I can’t express how much I appreciated their visit. Kelle, of course, had us all laughing with her ridiculous stories. And they brought news of home and what was going on there. I had fun listening to their wonderfully normal lives and it distracted me from my own pain. And somehow Kelle was able to bring homemade cookies and an entire Simply Bundt pumpkin spice cake, through security and onto the plane! She’s so funny. Susan shared things going on with her family too and it made me happy to hear about Craig’s recent trip to Mexico and what was going on with Brian and Matt.

It may seem odd to many of you, but our church friends from Texas are like family to us and helped raise Tessa (my sister) and I. Just hearing things going on in their lives and seeing them warmed my heart. It was like I had a slice of home and comfort for a short while. And I didn’t feel so alone and stranded in Georgia. It was very nice.

I also want to thank Veracode, the company my Father works for, for the beautiful pink roses. They’ve opened up beautifully and match Brielle’s chalkboard perfectly. The day they arrived was a very hard day for me and they were a wonderful surprise that brightened my day.

I did little things for Brielle today. I meant to eat skittles, but forgot, and then was mad at myself for a few minutes because I forgot. I drank a coke for her, her favorite soda, and updated her chalkboard, which was extremely painful to do. Wiping away 40th and six days from the board broke my heart, I don’t want life to move on, but it does, whether I like it or not. My Dad took pictures of David and I in front of the sign, but I couldn’t manage a smile. I tried my best and it turned out more like a snarl. Well then that had me laughing, who snarls in a picture? So then he caught some awkward smiles, which I can share if y’all would like. In each picture I held my belly. I still hold her even though she’s not there anymore.

Carrying Brielle wasn’t the hard part, living without her is. This part that I’ll be living for the rest of my life, is the part that hurts the most. I miss her.

Our Last Night Together

~ lovingbrielle ~ Leave a comment

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Tonight is most likely my last night with Brielle. I’ve not wanted to post anything or respond to much because I just want to soak up as much of my sweet girl as I can. Twelve hours from now I’ll be getting ready to leave Brielle here and she’ll be taken to the morgue. I can’t imagine leaving her and it tears me apart. She’s not supposed to be without her Mommy.

So tonight I’ve kissed her sweet cheeks and lips, and I’ve gone over all of our memories together. David and I have cried and laughed as we watched videos of her moving in my tummy or us having a party for her and singing happy birthday. We’ve gone over all of our pictures together and it’s brought us indescribable joy. As we were going through things, David said, “We learned so much from her.”

We did. We had some of the best times with her that we’ve had in our whole lives. We’re both torn up and in unimaginable pain and just the thought of leaving her tomorrow makes me want to curl up in a ball with her and never let go. And our hearts are completely broken. But at the same time they’re full. They’re full of happy memories and a beautiful journey that we wouldn’t trade for anything. David and I have been incredibly blessed by Brielle. She’s more than we could ever have hoped for or dreamed of.

Our Prayer Requests for Brielle’s Birth

~ lovingbrielle ~ Leave a comment

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This weekend and the beginning of this week are, perhaps, going to be the hardest time of mine and David’s life. We have not been able to come as far as we have without the love, encouragement, and prayers of the many who follow this page and who follow our story. David and I will never be able to express how much we appreciate everyone’s kindness to us during this time. We’ve come to rely on everyone’s love and prayers during this time and even though you have all given so much, we need to ask for even more. We need so much prayer during the next few days.

I am overwhelmed at times with fear and anxiety. I believe that God could still reveal a complete healing for Brielle or that he could be in the process of healing her. I also know that healing may not be in his plan and while I trust God in this, I don’t know how to exist without my sweet Brielle. I think of the moment I have the epidural and I no longer feel Brielle move. What will her last wiggle feel like and when will it be? I’m so terrified of this time. I just want to see my little girl grow up, I just want her to live. I’m doing my best to stay positive, but I feel like I’m about to fall apart, and this is the time I need to be the strongest! Brielle doesn’t need a Mommy that is a basket case, she needs a Mommy that will guide her through this transition, whatever it may be. So we need prayers, so many prayers.

David and I need strength and courage. We need peace and hope. I don’t want to cry while she is alive, I need help with this. When (or if) I see her exposed brain, I will have a pretty good idea of how long she will last, and I need strength in that moment. If she passes, I need the strength to help her through that process and tell her it’s okay. I need the courage to handle whatever situation we are presented with. And I need the peace that passes understanding. And I need hope. I need to hope for her and not let stats deter me from hoping the best for Brielle.

I also need medical prayers. I was advised to never have abdominal surgery again, and I’m about to have a major one. I need prayers for my recovery, specifically my nervous system. The nerves in my abdomen are severely damaged from previous surgeries and they can’t handle much more damage. Dr. B is one of the best and a very talented surgeon, I trust him. Regardless, my body doesn’t handle surgery well. Please pray I recover well from this and am coherent and not drowsy after delivery. Please also pray that I do not have postpartum hemorrhaging from my polyhydramnios or an amniotic fluid embolism due to the poly and Brielle’s anencephaly.

Then there is sweet Brielle. She needs the most prayer. She needs prayers of healing, miraculous healing, complete healing, she needs prayers of life. She needs prayers of physical and emotional strength. Brielle needs courage as well. This is going to be a very scary experience for her. She’s going to experience what all babies experience, cold, light, loud noise, etc. And that is going to be a big adjustment, especially if her brain is exposed. She’s going to be scared, I’m going to sound different, everything is going to be scary and she may be in pain. She needs help with this. She needs to be able to eat and breathe on her own. She needs prayers that she wont develop an infection and that her vitals will be stable and strong. She needs prayers specifically for her brain: that the nervous system is strong, her blood vessels are strong, the tissue is strong, organized and well developed. If her brain is exposed, we need prayers that she stays warm and that her brain tissue stays healthy (her brain covering will be kept wet and that will make her very cold). If it’s not God’s will for her to live, please pray that she has as much time with us as possible. We want her to meet as many people as possible and to only know love and happiness. Please pray that this is possible. Please also pray that she is in a breech position at the time of delivery. Dr. B plans to pull her out by her feet to reduce damage to her brain, he will turn her by sticking his hand into my uterus, grabbing her legs, and turning her. It would be great if she was already in the position he needed.

And then there is David, these requests are directly from him. That he has the strength for the situation, that he wont be exhausted. That he wont be afraid for her and he wont be pessimistic. And that he will trust God to get us and her through. And that he will be a good Daddy and a good husband (which he already is).

Thank you all for your love and support during this time.