Brielle’s Trip to Disney World

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David and I went to Disney World when Brielle was eleven weeks. We had a horrible honeymoon and this was one of our “make up” trips (we’ll be making up that trip for a long time, it was that bad). We had originally planned the trip thinking it would take me a while to get pregnant, like a few months at least. Little did we know that I am part rabbit. Needless to say I didn’t ride a lot of the rides, but we still had a ton of fun. We also used this trip as our pregnancy announcement picture.

We took all kinds of pictures with Disney characters and even had dinner in Cinderella’s castle and took pictures with the Disney Princesses. At the time I felt a little odd taking my picture with a bunch of adult women, my age, pretending to be a princess, it was like a weird Halloween. Looking back I’m so thankful that I did all of those things. We had so much fun and Brielle had a trip to Disney world!

She got to ride the Little Mermaid ride, eat in Beast’s castle, and have the “grey stuff” (it was delicious). We went to Epcot and “traveled” the world together. We hung out in Hollywood Studios and took lots of pictures there. And while we had planned on going to Animal Kingdom, I was way too tired for it. I couldn’t feel Brielle moving yet, so I’m not sure what she was aware of, but I’m still happy we made these memories with her.

The whole time we were there I kept wondering what it would be like to have a little girl at Disney World (I was certain I was pregnant with a boy). Little did I know that I did have a sweet little girl in my tummy. I was really tired my first trimester and didn’t know if it would be smart to go ahead with the trip, but we did it anyways. I’m so glad we did. At least I can say we took Brielle to Disney World. She really was a very lucky little girl.

Side note: It was super humid, no surprise there, and really hot. Not crazy hot, but just hot. And the onesie I’m holding was the first thing we bought for Brielle.

Thrift Shopping with Brielle

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One of my favorite things to do is thrift shop. And one weekend, early in my pregnancy, I dragged David along to look for antique baby things (we found an old rocking horse). While we did get the rocking horse, we mostly were sidetracked by the many albums for sale. We found a lot of great things, and we also found an entire John Travolta collection.

Maybe some of you are fans of his musical works. Personally, I’ve never listened to it, but finding his entire collection was just too good. David and I had a great time laughing at the hilarity of it all. John Travolta stayed at the thrift store, but we came home with the Best of Bread and a Jim Croce album.

I love this memory of David, Brielle, and I. We were optimistic and looking forward to a life with Brielle. We’d find out a few weeks later that she had anencephaly, but at least in that moment we were all happily making fun of John Travolta.

Brielle’s First Snow

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Trying to hold Rosie still, so we can get a picture.

I was going through all of my pictures since Brielle was conceived, wondering what we did before we received her diagnosis. And I came across these pictures. I was sadly anticipating the first snow without Brielle and little did I know, she did get a snow. It made me so happy to see these.

Brielle was just a little poppy seed at the time and I have no idea what she was aware of, but still. She had a snow! She was there. Microscopic, but there. I’ll be sad when our first snow comes and she isn’t with us, but I won’t be as sad. I can at least think back to this moment, which I documented very well.

Emmy loves snow. And on this day, Emmy woke David and I up, because she could see the snow outside. She was running around, jumping excitedly, giving us her “awoo’s,” and finally jumped in bed with us to let us know she was ready for her playtime. She just goes wild in it. Rosie on the other hand isn’t that big of a fan. She doesn’t like the cold, and is kind of confused about the function of snow. Emmy sees it as something to play with and Rosie can only deduce that it is something you eat.

While Emmy goes into a frenzy and chomps down on frozen sticks, Rosie and I play eat the snow ball. I throw a snow ball and she runs after it and eats it. She then proceeds to try and eat all of the snow in the yard. Thankfully Emmy keeps her distracted and will induce a frenzy like state in Rosie as well. And then it’s just wild dog babies everywhere.

I’m thankful that this snow happened while David was home and that we got to have such a great time together as a family. One of Brielle’s first “memories” was all of us laughing and playing in the snow. I think that’s a pretty great way to start out a life.

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Brielle’s First Lake Trip

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This weekend I’ll be in Arkansas having a Wolford Christmas. My grandparents retired to Arkansas a while ago, but my family has been going to Henderson for decades. As a family we all visit for the summer holidays.

The last time I was in Arkansas was for Memorial Day. It was a couple of weeks before Brielle would be diagnosed with anencephaly. The weekend was cold and rainy and most of us stayed indoors. We took one boat ride (highly unusual for us all) the whole trip. Of course it was the first time out for the season and the boat ran out of gas (come to find out someone had stolen our gas). But it was a fun outing. Tessa would be getting married in about a month, so we spent a lot of time going over wedding and travel plans.

Even though it was a lazy weekend and wasn’t the weekend we usually have (we usually spend the whole weekend on the lake and eating, Papa called us locusts), I still wanted to get in the lake. I’ve been in that lake every year of my life, I wasn’t going to miss a year just because I was a) pregnant and b) it was cold and rainy. So Mikayla and Teagan (cousins) and Tessa and Zach (sister and brother in law) all went down to the end of the road and got in the lake. Mikayla just stuck her feet in. And Teagan didn’t last too long (she doesn’t have a lot of insulation). It was really cold. But Brielle and I still went for a swim. I think she had fun. I was starting to feel her move at this point in my pregnancy and she did a few wiggles for me. As we all know, she was a natural swimmer.

I’m glad Mikayla took this picture of all of us. It’s the only picture I’ll ever have of Brielle on the lake. I didn’t know at the time that this would be her only visit to Arkansas. And I don’t think I would have done anything differently, I mean, we even took the boat to the cliffs (we jump off the cliffs into the lake). So she did the major things we do as a family. I think we’ve all jumped, right? Mikayla’s father, my Uncle David, used to swan dive off of the cliffs when he was a boy.

It’s going to be weird being back at the lake and not having Brielle with me. I’m bringing her teddy bear urn, but obviously, it’s not the same. I am excited to see my family though. It’s been a hard couple of years for us all, but it will be good to get together. I’ve missed them.

Part Two: God’s Healing Hand

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Part two: Gastroparesis involves paralysis of the vagus nerve. This nerve is critical to the function of the entire body and originates in the brain stem. Damage to it causes problems all over the body. One of the things the vagus nerve does is control contractions of the stomach. Your stomach contracts to pulverize food and push it through to the intestines. Mine was broken, no contractions, no pushing out food. Because of this, I fully anticipated that I would not have typical morning sickness.

Sure enough, I never had morning sickness. I suffered severe nausea for a few weeks, but I never threw up. People would tell me I was lucky, but I was thinking, I wouldn’t call this luck. Things started to feel different as my pregnancy progressed. I could eat more foods and not suffer. My appetite was back, I was actually experiencing hunger, a sensation I had long forgotten.

I found myself loving pregnancy, because for the first time in nearly a decade I felt like a normal person. Each month I felt more and more like a normal person. I had forgotten what “normal” felt like and it was revolutionary to feel what everyone else felt. I loved it. I loved every moment of it. Pregnancy suited me.

Of course you all know the struggles I faced during my pregnancy. And physically it was difficult, but nothing compared to what I had dealt with for the past nine years. But even though I felt better, I would still get sick and could still induce a gastroparesis episode by consuming certain foods.

Throughout my pregnancy we all prayed for healing. We prayed that Brielle would live, survive, a complete and full healing. And we were all heartbroken when she didn’t survive. And while I want to talk about that more in another post, what I do want to share is a strange healing that did happen.

In rare cases pregnancy can cure gastroparesis, for reasons unknown. Of course I hoped for this, but I didn’t expect it to happen. After Brielle was born I fully anticipated that the pain killers they had me on would cause problems and that I would be sick. The smallest dose of Motrin (ibuprofen) would make me violently ill, it had been that way for years. I was taking 800 mg of motrin three times a day and percocet four times a day and had no adverse effects. I thought this was odd, but attributed this to my breastfeeding (pumping) or the hormonal effects of pregnancy.

Yet, more and more time passed and I didn’t have any GI problems. I began to eat foods that caused flare ups. Nothing. No problems. I was hungry two hours later. A normal stomach empties in ninety minutes. My stomach was behaving like it should. Odd. What about my intestines? Strangely, pain free. I did experience bloating around Christmas (one of the more annoying side effects of GI problems), but I noticed I was bloating when I ate highly processed and sugary foods. That’s really not that abnormal. Cut out the junk food and my mild bloating was gone.

While I want to wait until the six month mark to declare myself cured, I find myself marveling at this healing I’ve experienced. Here we had all been praying for Brielle and instead it was me who was healed. Me who has spent the last decade struggling to survive, is normal. Perfectly and wonderfully normal.

At first I felt guilty and it pained me. I didn’t want to be better, I wanted Brielle to live. The healing should have gone to her. She should be the one who gets better, not me. But as time passes I find myself more and more thankful. And completely moved. She fixed me. Her beautiful little life fixed me. All of her love fixed a decade of horrible damage. Nerves that were broken in both of us were cured. And the only slight problems I have are with my intestines (a whole other set of nerves).

And who do I give the credit to? Science? God? Brielle? Could they not all be one and the same? Could not all of our prayers healed me? And could not God have used Brielle and science to accomplish that goal? He is the creator, he did create science. Can I not understand the how, but also give credit to the one who created the how?

I’m still piecing all of this together in my mind. But I’m so thankful. I have a second chance. I was given the opportunity to live, because of Brielle’s life. Brielle’s sweet love healed me. I have a chance now. I might get to grow old now. And maybe I’m not 100% and maybe in a few months I’ll start having problems again. I don’t know. But I do know that right now, I don’t have any problems and that is a miracle.