Comforting Others

One of my fears or anxieties that I’ve developed since Brielle has died, is the fear and knowledge that people will assume I’ve never had children. I’m young and I’m not toting around a baby. I find myself wondering how I’ll react when someone says, “Oh you’ll understand one day when you have kids.” Or “When do you plan on having children?”

Even before Brielle, these statements always sounded incredibly condescending or prying. And now I have to navigate them with an additional layer of pain. I’m really not sure how to properly respond. And I find that when I’m not prepared I generally blurt out whatever comes to mind. For instance, my first thought is to say, “I do have a child and she’s dead.” And that really isn’t the best way to handle a situation like that.

I did do well the other day (at least I think I did) when a waitress asked how old my daughter is. She asked because I mentioned I could finally eat rarer meat. I told her, “She would have been one month.” The waitress caught what I was saying and left it at that.

I find myself wondering how to freely talk about Brielle without upsetting other people with the reality that my daughter died. How to be polite about death. This really wasn’t something I ever envisioned having to think about or prepare for. This whole situation is strange. And I still want to talk about Brielle. But I don’t want to console others either. People get so upset when they find out and I just want to tell them about Brielle, I don’t want to have to tell them it’s okay and effectively make them feel better about the situation.

I wish we weren’t so uncomfortable about death. It happens all the time. And we (myself included) go about life acting like it doesn’t happen. Or it couldn’t possibly happen to us. We get uncomfortable around people who have just experienced it, like it’s contagious. And instead of accepting it, we push it away and when it does happen we’re left wondering how to handle it. And here I am, wondering how to make others comfortable about Brielle’s death. Strange isn’t it?

My One Week Check Up

I wrote this after my one week check up: Yesterday was my one week check up. It hurt going into the office for the first time without Brielle. It felt so very wrong. And I was okay, I kept it together, until another new mother came into the empty waiting room. Out of all the chairs she sat right next to me, with her brand new baby girl, and began nursing her. I turned my back to her, held David’s hand, and started crying. Thankfully, the staff is very kind at SeeBaby and the nurse that always takes care of me quickly got me into a room.

David and I struggled to get it together while we waited for the midwife to see us. The midwife was nice, thankfully knew our Brielle had died, and was very kind to us. My incision looked “beautiful” and “perfect.” I’m healing very well and she’s very happy with my progress. I know everyone cares about that, but I don’t. I just don’t care about much anymore. I feel numb.

I needed to pick up a few things at Target, I was in a lot of pain, but I needed a few things. We passed the baby aisle and I saw Christmas bows for infants and sweet little outfits. I leaned on David and cried. I walked through Target crying. David physically held me up when the pain was too much, he held my hand when I was too numb to make a decision or move. He guided me through Target and let me have “retail therapy” as he calls it.

All I could think about as we shopped, was how Brielle should be here. She should have a crib. She should have a Christmas this year. I should have celebrated Christmas with her, why didn’t I do that? We could have done that for her 25th week. I should buy her a stocking, but it has to be perfect. Brielle should be here.

There were screaming babies everywhere, families out with their children, having lunch with their children. Kids in the toy aisle. We left the parking lot and a blonde little girl around seven skipped in the crosswalk in front of us with a big pink balloon and waved hello to us with a huge smile. I waved back and cried. Brielle would be like that little girl.

I miss her. I miss my baby. My arms are empty and my body craves a baby, it knows there is supposed to be a baby here. And she’s not here. I find myself wanting to try again soon, I need a baby. But I don’t want a baby, I want Brielle. I don’t want another little girl or little boy, I want Brielle. I want her silly personality, her strange taste in music, her pure beautiful heart. No one else is like her, and I want her. I miss her. I need her. No one else, just my beautiful Brielle.

Lisa’s Work for Anencephaly

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Lisa B. found this picture and added Brielle’s name and the quote. It was so encouraging when she shared this with me and I think it’s beautiful. It means the world to me when people share that they are thinking of Brielle. And I am so thankful for this.

Now, let me tell you how awesome Lisa is. Lisa is a part of the anencephaly community and she makes little bonnets and hats for new anencephalic babies. She donates them to these parents so that they can have cute and pretty things to give to their sweet anen babies. She is selfless with her time, kindness, and generosity. She creates other things for bereaved parents and is always willing to do a custom project for anen parents and bereaved parents. She is truly a very kind and wonderful person and has a very special place in the anencephaly community’s hearts.

The Evening of Brielle’s Birthday

Trust

On the day Brielle was born, after everyone had left and David and I were alone, David came to my side and said, “I’m mad. I’m mad at God. I was so sure he had healed her.” That morning I had posted a picture of Brielle, David, and I getting a picture with the Coca-cola polar bear. Earlier that evening I had checked the Loving Brielle page and in a single day there had been over 35,000 people who had come to the Loving Brielle page and had seen her story.

On average, the Loving Brielle page reaches around 8,000 people per week. This happens by people liking, sharing, and commenting on the pictures and posts. Somehow, in one day her little life reached 35,000 people! That is incredible.

I grabbed David’s hand and said, “I know. I hoped for the best too. But David, Brielle reached 35,000 people today. I don’t know why God didn’t heal her and let her live, but her story isn’t over. God has a bigger plan for her. Look at everything that happened today. Her story isn’t over. We just need to be open to God’s plan and trust him.”

He wiped at his tears and said, “I know, but it still hurts so much.” And it does. We both know that there will be more to Brielle’s life. Clearly God has a plan for us and for her legacy, but we have no idea what that plan might be. Her absence is felt every moment of everyday. And it hurts constantly. And we both get upset with God.

And I think that is important. I think it’s healthy to be upset with him. I think he expects it and I don’t think he is angry with us for being angry. He understands. And I think that is one of the most comforting things about losing Brielle. I can’t be too angry, God would have spared her if it had been for the best and I know this because God also lost his son and he wouldn’t wish this pain on anyone else, especially his own children. And so I know, that like Jesus, it must have been necessary for Brielle to pass now. I may never know the reason, but I can trust that God did not heal her because it was what was best for her.

That doesn’t mean that I don’t hurt. Because I do, quite a bit. But she’s safe and happy. She’s loved and only known love. He did everything he could for us and he made the loss of her life as loving and gentle as it could be. At the end of the day David and I trust him and we trust his plan for our lives.

Brielle’s Trip to Disney World

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David and I went to Disney World when Brielle was eleven weeks. We had a horrible honeymoon and this was one of our “make up” trips (we’ll be making up that trip for a long time, it was that bad). We had originally planned the trip thinking it would take me a while to get pregnant, like a few months at least. Little did we know that I am part rabbit. Needless to say I didn’t ride a lot of the rides, but we still had a ton of fun. We also used this trip as our pregnancy announcement picture.

We took all kinds of pictures with Disney characters and even had dinner in Cinderella’s castle and took pictures with the Disney Princesses. At the time I felt a little odd taking my picture with a bunch of adult women, my age, pretending to be a princess, it was like a weird Halloween. Looking back I’m so thankful that I did all of those things. We had so much fun and Brielle had a trip to Disney world!

She got to ride the Little Mermaid ride, eat in Beast’s castle, and have the “grey stuff” (it was delicious). We went to Epcot and “traveled” the world together. We hung out in Hollywood Studios and took lots of pictures there. And while we had planned on going to Animal Kingdom, I was way too tired for it. I couldn’t feel Brielle moving yet, so I’m not sure what she was aware of, but I’m still happy we made these memories with her.

The whole time we were there I kept wondering what it would be like to have a little girl at Disney World (I was certain I was pregnant with a boy). Little did I know that I did have a sweet little girl in my tummy. I was really tired my first trimester and didn’t know if it would be smart to go ahead with the trip, but we did it anyways. I’m so glad we did. At least I can say we took Brielle to Disney World. She really was a very lucky little girl.

Side note: It was super humid, no surprise there, and really hot. Not crazy hot, but just hot. And the onesie I’m holding was the first thing we bought for Brielle.