Thrift Shopping with Brielle

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One of my favorite things to do is thrift shop. And one weekend, early in my pregnancy, I dragged David along to look for antique baby things (we found an old rocking horse). While we did get the rocking horse, we mostly were sidetracked by the many albums for sale. We found a lot of great things, and we also found an entire John Travolta collection.

Maybe some of you are fans of his musical works. Personally, I’ve never listened to it, but finding his entire collection was just too good. David and I had a great time laughing at the hilarity of it all. John Travolta stayed at the thrift store, but we came home with the Best of Bread and a Jim Croce album.

I love this memory of David, Brielle, and I. We were optimistic and looking forward to a life with Brielle. We’d find out a few weeks later that she had anencephaly, but at least in that moment we were all happily making fun of John Travolta.

Brielle’s First Snow

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Trying to hold Rosie still, so we can get a picture.

I was going through all of my pictures since Brielle was conceived, wondering what we did before we received her diagnosis. And I came across these pictures. I was sadly anticipating the first snow without Brielle and little did I know, she did get a snow. It made me so happy to see these.

Brielle was just a little poppy seed at the time and I have no idea what she was aware of, but still. She had a snow! She was there. Microscopic, but there. I’ll be sad when our first snow comes and she isn’t with us, but I won’t be as sad. I can at least think back to this moment, which I documented very well.

Emmy loves snow. And on this day, Emmy woke David and I up, because she could see the snow outside. She was running around, jumping excitedly, giving us her “awoo’s,” and finally jumped in bed with us to let us know she was ready for her playtime. She just goes wild in it. Rosie on the other hand isn’t that big of a fan. She doesn’t like the cold, and is kind of confused about the function of snow. Emmy sees it as something to play with and Rosie can only deduce that it is something you eat.

While Emmy goes into a frenzy and chomps down on frozen sticks, Rosie and I play eat the snow ball. I throw a snow ball and she runs after it and eats it. She then proceeds to try and eat all of the snow in the yard. Thankfully Emmy keeps her distracted and will induce a frenzy like state in Rosie as well. And then it’s just wild dog babies everywhere.

I’m thankful that this snow happened while David was home and that we got to have such a great time together as a family. One of Brielle’s first “memories” was all of us laughing and playing in the snow. I think that’s a pretty great way to start out a life.

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Brielle’s First Lake Trip

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This weekend I’ll be in Arkansas having a Wolford Christmas. My grandparents retired to Arkansas a while ago, but my family has been going to Henderson for decades. As a family we all visit for the summer holidays.

The last time I was in Arkansas was for Memorial Day. It was a couple of weeks before Brielle would be diagnosed with anencephaly. The weekend was cold and rainy and most of us stayed indoors. We took one boat ride (highly unusual for us all) the whole trip. Of course it was the first time out for the season and the boat ran out of gas (come to find out someone had stolen our gas). But it was a fun outing. Tessa would be getting married in about a month, so we spent a lot of time going over wedding and travel plans.

Even though it was a lazy weekend and wasn’t the weekend we usually have (we usually spend the whole weekend on the lake and eating, Papa called us locusts), I still wanted to get in the lake. I’ve been in that lake every year of my life, I wasn’t going to miss a year just because I was a) pregnant and b) it was cold and rainy. So Mikayla and Teagan (cousins) and Tessa and Zach (sister and brother in law) all went down to the end of the road and got in the lake. Mikayla just stuck her feet in. And Teagan didn’t last too long (she doesn’t have a lot of insulation). It was really cold. But Brielle and I still went for a swim. I think she had fun. I was starting to feel her move at this point in my pregnancy and she did a few wiggles for me. As we all know, she was a natural swimmer.

I’m glad Mikayla took this picture of all of us. It’s the only picture I’ll ever have of Brielle on the lake. I didn’t know at the time that this would be her only visit to Arkansas. And I don’t think I would have done anything differently, I mean, we even took the boat to the cliffs (we jump off the cliffs into the lake). So she did the major things we do as a family. I think we’ve all jumped, right? Mikayla’s father, my Uncle David, used to swan dive off of the cliffs when he was a boy.

It’s going to be weird being back at the lake and not having Brielle with me. I’m bringing her teddy bear urn, but obviously, it’s not the same. I am excited to see my family though. It’s been a hard couple of years for us all, but it will be good to get together. I’ve missed them.

Part Two: God’s Healing Hand

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Part two: Gastroparesis involves paralysis of the vagus nerve. This nerve is critical to the function of the entire body and originates in the brain stem. Damage to it causes problems all over the body. One of the things the vagus nerve does is control contractions of the stomach. Your stomach contracts to pulverize food and push it through to the intestines. Mine was broken, no contractions, no pushing out food. Because of this, I fully anticipated that I would not have typical morning sickness.

Sure enough, I never had morning sickness. I suffered severe nausea for a few weeks, but I never threw up. People would tell me I was lucky, but I was thinking, I wouldn’t call this luck. Things started to feel different as my pregnancy progressed. I could eat more foods and not suffer. My appetite was back, I was actually experiencing hunger, a sensation I had long forgotten.

I found myself loving pregnancy, because for the first time in nearly a decade I felt like a normal person. Each month I felt more and more like a normal person. I had forgotten what “normal” felt like and it was revolutionary to feel what everyone else felt. I loved it. I loved every moment of it. Pregnancy suited me.

Of course you all know the struggles I faced during my pregnancy. And physically it was difficult, but nothing compared to what I had dealt with for the past nine years. But even though I felt better, I would still get sick and could still induce a gastroparesis episode by consuming certain foods.

Throughout my pregnancy we all prayed for healing. We prayed that Brielle would live, survive, a complete and full healing. And we were all heartbroken when she didn’t survive. And while I want to talk about that more in another post, what I do want to share is a strange healing that did happen.

In rare cases pregnancy can cure gastroparesis, for reasons unknown. Of course I hoped for this, but I didn’t expect it to happen. After Brielle was born I fully anticipated that the pain killers they had me on would cause problems and that I would be sick. The smallest dose of Motrin (ibuprofen) would make me violently ill, it had been that way for years. I was taking 800 mg of motrin three times a day and percocet four times a day and had no adverse effects. I thought this was odd, but attributed this to my breastfeeding (pumping) or the hormonal effects of pregnancy.

Yet, more and more time passed and I didn’t have any GI problems. I began to eat foods that caused flare ups. Nothing. No problems. I was hungry two hours later. A normal stomach empties in ninety minutes. My stomach was behaving like it should. Odd. What about my intestines? Strangely, pain free. I did experience bloating around Christmas (one of the more annoying side effects of GI problems), but I noticed I was bloating when I ate highly processed and sugary foods. That’s really not that abnormal. Cut out the junk food and my mild bloating was gone.

While I want to wait until the six month mark to declare myself cured, I find myself marveling at this healing I’ve experienced. Here we had all been praying for Brielle and instead it was me who was healed. Me who has spent the last decade struggling to survive, is normal. Perfectly and wonderfully normal.

At first I felt guilty and it pained me. I didn’t want to be better, I wanted Brielle to live. The healing should have gone to her. She should be the one who gets better, not me. But as time passes I find myself more and more thankful. And completely moved. She fixed me. Her beautiful little life fixed me. All of her love fixed a decade of horrible damage. Nerves that were broken in both of us were cured. And the only slight problems I have are with my intestines (a whole other set of nerves).

And who do I give the credit to? Science? God? Brielle? Could they not all be one and the same? Could not all of our prayers healed me? And could not God have used Brielle and science to accomplish that goal? He is the creator, he did create science. Can I not understand the how, but also give credit to the one who created the how?

I’m still piecing all of this together in my mind. But I’m so thankful. I have a second chance. I was given the opportunity to live, because of Brielle’s life. Brielle’s sweet love healed me. I have a chance now. I might get to grow old now. And maybe I’m not 100% and maybe in a few months I’ll start having problems again. I don’t know. But I do know that right now, I don’t have any problems and that is a miracle.

Part One: God’s Healing Hand

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Part One: December 16, 2006 my appendix ruptured. For two days I had been complaining of severe abdominal pain. It had been so bad on the first night that I cried out for my parents for hours. The next morning I was blacking out in the bathroom. My Dad told me to take an ibuprofen and some toast. It wasn’t that time of the month and it wasn’t ovulation time. Something was wrong, but no one would listen to me. My classmates and my teachers were worried about me, but when I went to the nurse she blew me off and gave me a coke. The second visit to the nurse’s office her and Mom finally caved and I was allowed to go home.

On the second night I took matters into my own hands and got on Webmd. I put in all of my symptoms and Appendicitis came up as a possibility. I called my Mom and told her she needed to take me to the ER. She asked if I was sure, she was on her way to a Christmas party and didn’t want to miss it if I wasn’t seriously ill. I told her yes, I was sure. I knew that it had almost been a full 48 hours and my appendix was near rupture time.

We went to an urgent care clinic, they did the preliminary work and agreed it appeared to be appendicitis, but would need a CT to be sure. They started me on contrast and sent me to the ER. The ER quickly had me in a bed and on a morphine drip. The pain was so bad I kept asking for more morphine, but I was maxed out. The CT confirmed appendicitis and eventually I was moved to a room. A surgery was scheduled for the following afternoon.

As I was getting into the bed in my room I felt a horrible pain in my side. It was the worst pain I’ve ever felt in my life and I began screaming. The charge nurse heard me screaming and called the surgeon to tell him she was pretty sure my appendix had ruptured. He moved the surgery up to the morning. And after my appendix ruptured I felt wonderful and slept peacefully. For about six to eight hours I had an awful infection brewing in my abdomen.

The surgeon went in, saw that it had ruptured, and cleaned up the mess. I was in the hospital for a week and the first few days were tense. I was never right after that. Within six to eight months I was having horrible abdominal pain. Everything I ate hurt and the pain got to the point where I couldn’t walk. It hurt just to move. I went from doctor to doctor and they would dismiss me as too young and most likely constipated. I ended up back with my surgeon and he believed there were adhesions. A surgery was scheduled for the summer after graduation.

He went in, removed my adhesions, which were pretty bad. They had wrapped around my liver and intestines and there was a strange unidentifiable liquid hanging out in my abdominal cavity. My gallbladder was removed as a precautionary measure. I felt so much better – for two months.

Freshman year of college I began, once again, going from doctor to doctor trying to figure out why I was in such excruciating pain. For now, I’ll spare you the details of the next four years. But I spent four years searching for an answer. No one had one. I tried all kinds of dietary changes, lifestyle changes, anything to make the pain stop. Nothing worked. Spring semester of 2011 at the University of Georgia, the school recommended I see a doctor in Athens. I saw him and we did a few tests and he diagnosed me with Gastroparesis. I had never heard of it.

Gastroparesis means stomach paralysis. He offered two medications and a low residue diet. The first didn’t work. The other is blacklisted by the FDA and began to give me twitches, I had to be pulled off of it. The low residue diet helped sometimes. Ultimately, I was in rough shape with no hope of getting better. I asked my doctor what to do, and he told me to experiment. I threw myself into research and used my body as a test subject. I tried everything and anything. I had long given up on school and work. My body couldn’t handle it and by this point I was just struggling to survive. Living out a life wasn’t even on the table. Things that worked I would share with my doctor and he would write them down as recommendations for his other patients. It became an odd doctor patient relationship, where I educated him and he took notes.

I wanted to live, but my body was literally rotting from the inside out. Undigested food would remain trapped in my body for weeks at a time and nothing I did would help it out. My Dad got me an appointment at the Mayo clinic in the summer of 2012. They did every test imaginable. Including one where they dusted me with powder and baked me in an oven until I turned purple, no joke. The results? The same as the doctor in Athens, GA. I had gastroparesis and some unidentifiable intestinal problem. The doctor at Mayo told me that while he knew what was wrong with my intestines existed, he had no name or treatment options he could offer. His solution for my gastroparesis? Daily enemas. I declined.

February of 2013 I decided that if I was going to die I at least wanted to go to Europe before that happened. I chose Paris and David and I booked a trip. Two months later we were in Paris. David proposed and I felt alive for the first time in seven years. My body was functioning at a level it hadn’t in years. Why? Well I’d been in the sun almost the entire day, every day for a week. It was the only thing that had changed. Vitamin D. I needed a boost of vitamin D. I began to supplement and I noticed a marked improvement. Enough so that I began to have hope for a life again.

Slowly, I began to heal my gastrointestinal tract. David and I were married and in the winter of 2014 I went in to have blood work done to see how well my body was doing. My body was doing great and I had a proper balance of supplements to keep it functioning. I was still sick, but I at least could function. It’d taken me eight years, but I had developed a system that worked. My doctor gave me the go ahead to start having children.

Winter of 2015 I was pregnant with Brielle. I’ll talk about how this applies to my gastrointestinal health in my next post.

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