Anencephalic Monster

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Last night, in an effort to learn more about exactly what causes death in anencephalic babies, I stumbled across the work of a midwife who in the ’80s worked to end the medical term anencephalic monster. Never once have I thought of Brielle as a monster. Brielle doesn’t look like other babies, and she wont always act like other babies. But no matter her disability, she is not a monster, and she deserves a chance at life no matter how short her life is. And I’ll fight for that right until my last dying breath. It hurts to think she wont be with us for long and it tears me apart to feel how happy and special she is and to know that once she’s born the clock starts ticking. But already her little life has provided David and I with more love and happiness than anyone can imagine. She’s beautiful and special. She likes it when I talk to her and she loves to hear her Daddy’s voice. She’s perfect and if given the chance to do it all over again I’d choose her every time.

A Texas Visit

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Brielle and I flew in to Texas, on Tuesday, for my little sister’s wedding this Saturday. We’re so excited for Aunt Tessa and Uncle Zach! Brielle and I have been super busy since we got here, but we’ve had so much fun with family and friends.

Brielle was pretty quiet Tuesday and Wednesday (I think it was just a lot of new stuff and sounds for her), but Wednesday night at church she perked up! She was hiccuping, and then she had a big stretch and pushed on me with her hands and feet. Everyone at church was so kind and encouraging and they were all so wonderful to little Brielle! My little girl is so special and so loved!

Thursday we went to a bridesmaids luncheon and sweet Susan bought Brielle pineapple!! Just the smell of it had little Brielle so excited, needless to say we had a great time (especially Brielle!). Thursday was also Aunt Tessa’s bachelorette party, but we were too tired to go, I was very sad about that. We went to Abuelos for dinner and had fajitas with a lot of onions and red peppers. Brielle was beyond excited, in fact if I slowed down my eating she would start kicking me harder and faster, as if to say, “Hurry up Mommy, I’m hungry!!!” She’s so cute, and has such personality! I had quite a few laughs at her antics. She’s been a very happy baby, I’m so happy that I get to be her Mommy.

What Can a Fetus Do?

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Super long post, but really worth the read, especially for any expectant moms and anyone wanting to have kids in the future.

Having gastroparesis has made me extremely sensitive to how my body works, and as a plus, has made me very sensitive to all of Brielle’s movements and I’ve learned to distinguish her different kicks, and her different responses to things. While I know that what she does is real and not a delusion on my part, I wanted to have some proof for others, that when I say she hears me, she dances, she likes pineapple, others understand that, yes, a baby in utero can and does do those things. They have feelings, they react to pain, they are sensitive to touch, etc. So I’m going to share some information on what is currently known about fetal development and I’ll provide links for reference, and in another post I’ll talk about how I’ve noticed differences with Brielle based on her diagnosis of anencephaly.

  • At 7 weeks a fetus emits a stress hormone to pain.
  • At 9 weeks a fetus can hiccup.
  • At 9 weeks a fetus can react to loud noises.
  • At 9 weeks a fetus begins to smell.
  • At 10 weeks a fetus begins to urinate.
  • At 10 weeks a fetus “moves its arms, ‘breathes’ amniotic fluid in and out, opens its jaw, and stretches. Before the first trimester is over, it yawns, sucks, and swallows as well as feels and smells.”
  • At 13-15 weeks a fetus has mature taste buds.
  • At 15 weeks a fetus begins to swallow amniotic fluid (amniotic fluid tastes and smells like the foods the mother eats). “The fetus likes certain tastes more than others, and will drink more amniotic fluid if it tastes sweet.”
  • At 16 weeks a fetus begins to hear.
  • “Neuroanatomical pathways necessary for processing pain, similar to those observed in adults and older children” begins at 18 weeks.
  • At four months a fetus responds to light.
  • At 20 weeks a fetus responds to touch.
  • At 22 weeks an aborted fetus is required by law to receive pain medication before the procedure begins.
  • At 24 weeks hearing development is complete.
  • “From six months onward, your baby’s sense of awareness of the world outside the womb grows exponentially. This is because her brain cortex is developed enough for thinking…you can also use noises to teach your baby when to kick.”
  • At six months: “Sonograms taken while parents yell at each other show the baby’s entire body flinching in agitation. They also often cover their ears.”
  • At 32 weeks a fetus is behaviorally the same as a newborn “the
    fetus can feel, dream, even enjoy The Cat in the Hat.”
  • “A new study suggests that short-term memory may be present in the fetus at 30 weeks of age. They found that the young neo-nate had a memory of ten minutes duration. By 34 weeks they were able to store information and retrieve it four weeks later (Journal of Child Development, 2009).”
  • A fetus experiences REM and dreams.
  • “The fetus savors its mother’s meals, first picking up the food
    tastes of a culture in the womb.”
  • “Among other mental feats, the fetus can distinguish between the
    voice of Mom and that of a stranger, and respond to a familiar story read to it.”
  • “The human fetus moves 50 times or more each hour.”
  • A fetus is calmed by its mother’s voice, and recognizes its mother’s voice over that of a stranger’s.
  • “A newborn prefers a story read to it repeatedly in the womb…over a new story introduced soon after birth.”
  • “Newborns can not only distinguish their mother from a stranger speaking, but would rather hear Mom’s voice, especially the way it sounds filtered through amniotic fluid rather than through air. They’re xenophobes, too: they prefer to hear Mom speaking in her native language than to hear her or someone else speaking in a foreign tongue.”
  • “By monitoring changes in fetal heart rate, psychologist JeanPierre Lecanuet and his colleagues in Paris have found that fetuses can even tell strangers’ voices apart. They also seem to like certain stories more than others.”
  • “The fetus can listen, learn, and remember at some level, and,
    as with most babies and children, it likes the comfort and reassurance of the familiar.”
  • “The older fetus can sense what the mother is feeling. If the mother feels stressed or anxious playing a computer game, scientists have shown that the fetal heart rate goes up while she is playing it.” I have noticed this with Brielle as early as 21 weeks.
  • “Researchers at the University of Turin and the University of Panama in Italy used ultra soundography to demonstrate that social interaction exists between twins in the womb as early as the 14th week of gestation. By the 18th week they spent more time in planned contact with their sibling than themselves. The results suggest that twin fetuses are aware of their counterparts in the womb, prefer to interact with them, and respond to them in a special way.”
  • “An unborn child can sense and react to emotions such as love and rejection but also to more complex emotions such as ambivalence and ambiguity.”

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Chattanooga Aquarium

Friday afternoon we met our good friends John and Courtney at Mellow Mushroom for lunch and then went to the aquarium. I’m so grateful to John’s brother for getting us tickets to the aquarium, we had so much fun! We started in the ocean side and Brielle and I said hi to the stingrays and made sure to give them good pets, I tried my best to touch the baby hammerhead, but missed it, that’s okay though, the stingrays were sweet! We then went into the butterfly room! That room was very cool, it was filled with pretty butterflies that would get very close and sometimes land on you, there was even one butterfly that really loved John, and hung out on his cap for a while. Personally, I think David attracted a giant blue butterfly, because David was also wearing a blue polo. I found that humorous. We saw penguins and felt the water temperature that they swim in, very cold! The three of us went into a shark cage and took a picture, there weren’t any sharks around though wink emoticon And then we watched a bunch of sharks swim around with other fish and we even saw one shark being fed, although he was very uninterested, I guess he was full? There were a lot of jellyfish, a lot.

We then went to the freshwater side, and naturally, on our way down the escalator into the exhibit the escalator ate my dress. Now, I have had an extreme fear of escalators since I was a little girl and this was my exact fear! And lo and behold, I’m stepping off the escalator and it eats my dress, David had to rip my dress out of the escalator to free me. Those escalators have been after me my whole life, I’m on to them and their evil ways. The freshwater side was pretty cool too! We saw baby alligators and a ton of turtles, turtles are so cute. Brielle and I made sure to pet a sturgeon, it was not soft like the stingray, I was a bit disappointed, they are hard and they did not make me want to cuddle them, stingrays feel soft and cuddly, not sturgeons. We saw a ton of giant catfish, they were huge! And we met piranhas which John was very happy about. And there were so many sweet sea horses, they were so cute and small, we even saw dwarf sea horses that were so tiny!

We had so much fun! And I’m so glad we were able to share this memory with John and Courtney!