Brielle Is Turning One!

David and I are very excited to invite you all to Brielle’s first birthday! David and I will be spending the month leading up to her birthday remembering our favorite moments with Brielle and performing random acts of kindness in her honor. 

I would love to hear your favorite memories of Brielle and I would love for you all to join us in performing random acts of kindness in Brielle’s memory. I can’t think of a better way to honor her life and would love to hear about the things you all have done in her memory. 

I’ll be posting suggestions and ideas for the next month as we prepare for this huge milestone. The weeks leading up to Brielle’s birthday, and the day itself, will be very hard for us. David and I want to find the good and the blessings in her life, we want to celebrate her, just as we did while she was alive. I encourage you all to join us in finding the good as we prepare to celebrate Brielle’s first heavenly birthday. 

My Trauma & Struggles For The Past Nine Months 

I want to apologize for being so quiet lately, it has not been my intention. I’ve still been writing, working on a long series of posts that I wanted to complete first. I want it to feel more like a series of short stories. But that’s a whole other topic.

Things for us have been hard since Brielle died. Not long after her death I began struggling with flashbacks of my childhood, recovering memories I had forgotten (dissociative amnesia), and was diagnosed with post traumatic stress disorder (PTSD) by two different therapists.

I did not have the home life my family would like everyone to believe I had. I suffered immensely at their hands and am beyond thankful that God has kept me safe. He has led me to a place in my life where I am safe and have been introduced to a trauma therapist that can help me and guide me through this process. I am even more thankful that I do not exhibit any other symptoms of disorders associated with child abuse. However, I do struggle with dissociation (thankfully within the limits of PTSD and not enough to qualify for dissociative identity disorder).

I’ve struggled with my memories. Struggled with my fears, my anxiety, and my flashbacks. I especially struggle with safety since I’ve never known what it is to feel safe. So I’m working on it. I’m extremely motivated to heal and to better myself. I do not want to be bound by my past and to forever relive my trauma. I want to build a good and loving future for my family.

Because of my trauma I’ve been unwilling to have anything to do with my parents. This has caused both family church friends and family to turn their backs on David and I when we desperately needed support. I have been spoken to cruelly and unjustly with false accusations being thrown my way. And not once have I been allowed to defend myself. I have suffered from many who claimed love for Brielle and I, but I can only assume that it was not genuine. David and I have felt the cruel sting of their betrayal and grieve the loss of the friendships we thought we had.

Even for this I am thankful. I would rather know the truth than to let liars into my heart and home. And so I happily move on from them and look forward to the future.

My grieving process for Brielle has also been a struggle. Pieces of me desperately try to hold onto her memory, but dissociation hides my pain and memories of her. In many ways I feel like I’m losing her all over again, but I knew this could happen. Which is why, during my pregnancy, I kept a diary of the majority of my days with her. I try to comfort myself with this and tell myself that I at least have my writing. And this is also why I work so hard to heal my mind, I know I can recover the memories I’ve lost, I just need to recover from trauma.

While I’ve been struggling with all of this, David and I have also been taking care of Bernice, moving her to assisted living, and then back in with us. It’s been difficult to know what is right for Bernice. Everyone has their opinions of how another should be managed, but it’s not that easy and David and I want her to be happy and respected. She’s a very kind and loving woman and we want to do our best to maintain her dignity.

Through all of this I’ve been unsure what to say. How do I talk about what’s important to me and not retraumatize myself in the process? It’s been a confusing, difficult, and painful time. And through it all I’ve felt the need to speak and have heard God call me to speak about my trauma, but I have remained silent, my fear and shame keeping me paralyzed. I’ve found myself feeling more like Jonah than a faithful follower and obedient servant. I remind myself that fear is not from God, but even still I struggle, and I know this comes from my trauma.

I am well aware that many hate me. Many refuse to believe me or listen to me and that many of these people claim to be Christians. Christian hypocrisy is not something I am unfamiliar with. But I do not report to friends or family, I report to God, and my silence defies him, and this leaves me ashamed and disappointed in myself. God has continually worked in my life and protected me. He has used even my mistakes and sins for good and he deserves recognition and glory for this.

And so I need your prayers. I need your support and encouragement. I’ve spent the majority of my life fighting for the good in me. I am weak and beat down. I need hope. I also need prayers for guidance, wisdom, and healing. My body has suffered greatly and fought hard to keep me alive and it is exhausted. My mind’s trauma and abuse limits me and keeps me from functioning as I should, I want to be healed from this. I want to do more than survive. I want to live. I want to thrive. And so I desperately ask for your prayers, love, and compassion during this season of my life.

Why I Fight So Hard for DeKalb Medical and SeeBaby

I spent a lot of time at DeKalb Medical while I was pregnant with Brielle and, while I can’t speak for the rest of the hospital, the staff in the Women’s Center were incredible. They were attentive, compassionate, empathetic, knowledgeable, motherly, warm, inviting, I could go on and on. From Jamie and her incredible kindness, to the nurses, to the NICU nurses and Dr. Armand. I just couldn’t say enough about them.

12238372_960428740685253_8411194559644871175_o
Sweet Jamie! Let me know if you want me to take any of these down.

Jamie coordinated everything so that our day with Brielle would go as perfectly and seamlessly as possible. She mothered me when there was no one there to mother me. She loved Brielle and treasured her. She guided me through one of the hardest days of my life. I truly believe God sent her into my life and Brielle’s and that the day could not have happened without her. She is, truly, one of DeKalb Medical’s greatest assets.

Dr. Armand learned as much as he could about how he could treat Brielle and keep her brain tissue viable after her birth. He supported me, when even the Children’s Hospital of Atlanta denied Brielle care. He wanted what was best for Brielle and held onto hope for her, hope for a better outcome. He stood by and watched the delivery, ready to care for her if needed. Unfortunately, Brielle’s brain tissue was in very poor shape, she never had a chance. But, Dr. Armand and DeKalb Medical, can help other anencephalics who may have a chance.

12363117_963457047049089_1753717182314697693_o
Jamie with little Brielle.

The nurses and staff at DeKalb Medical and Dr. Bootstaylor worked together in perfect harmony. They respected each other and their work was beautiful. That kind of partnership, that kind of heart, is incredibly rare. It is something that should be encouraged and nurtured. And I, as well as many others, felt that it is a partnership worth fighting for.

I hope DeKalb recognizes what a special hospital they have, and I hope they weed out those who wish to do it harm, and lift up those who give wholeheartedly and selflessly.

DeKalb and Dr. Bootstaylor could operate separately and everything would be okay, but, again, this partnership is something special. I hope SeeBaby and the staff of DeKalb Medical know how much I love them all and support them.

I talk about my love of DeKalb here as well.

Posts About The Care We Received From DeKalb 

Part One: The Day Brielle Was Born

Part Two: The Day Brielle Was Born Continued

Part Four: Brielle Meets The Family

Our Last Day In The Hospital

 

This Mother Has My Full Respect: More Reason to Support Dr. Bootstaylor

I want to share a video another Atlanta mom made of her first birth experience and why she chose SeeBaby (Dr. Bootstaylor) for her next pregnancy. I’d ask that you really sit down and listen to this story, it is so telling of how current OB’s operate, and the best part is really at the end.

Current DeKalb Medical Head of Obstetrics information here and here. I think it is becoming clear why Dr. Bootstaylor is being targeted and who (or what group) is targeting him. This is completely unprofessional and ethically wrong.

What this doctor did is illegal and violates this mother’s inherent rights. No one should be treated with such barbarity and callous disregard. I have a deep respect for this woman, her bravery, and determination to do what is right, and speak out against obstetric violence against women.

Why You Should Care About Dr. Bootstaylor

12309961_960434917351302_2578408819107887327_o
Dr. Bootstaylor encouraging me as I read to Brielle for the last time.

So why does SeeBaby and Dr. Bootstaylor matter to Loving Brielle followers? Why am I so outraged? Why do I care if you care?

You all need to keep in mind that if Dr. Bootstaylor had not been an advocate for Brielle, if he had not been our doctor, that our standard of care would have been:

  • Encouraged fetal termination
  • Potential to be dropped as a patient and denied OB care because Brielle had anencephaly
  • Denied routine maternal care
    • My polyhydramnios would not have been monitored closely and safely.
    • Basic, routine, care would have been denied or discouraged.
  • Denied birth plan of my choice
    • This would have meant I could not have a family centered cesarean.
      • I would have never held Brielle alive, she would have been taken from me.
      • David would not have been allowed to video her birth.
    • I would not have been allowed to carry her as long as I did.
    • I would not have been allowed a bereavement doula (Lauren Bishop).
  • Brielle would have been denied standard fetal care because she “would die anyways” and take time away from healthy babies.
    • We would have never been allowed to meet with Dr. Armand (DeKalb neonatologist) or Jamie Ray. We were connected to Jamie by Dr. B and his practice, SeeBaby. And Jamie coordinated everything on the DeKalb Medical side. Jamie made sure everything was perfect for Brielle and I.
      • Jamie loved on Brielle as if she were part of her own family.  I love this picture of them.

        12363117_963457047049089_1753717182314697693_o

    • We would have never had routine or specialized ultrasounds.
      • We would have never had 3D ultrasounds of Brielle or watch her play in my tummy.
    • We would have never had a consult with neurosurgeons.
    • We would have never been allowed to believe Brielle had feelings and emotions of her own, likes and dislikes. In fact, we were laughed at by other practices.

And that’s just an overview of some of the ways Dr. Bootstaylor and SeeBaby took care of Brielle.

Sure, we can make this political, we can make this a woman’s rights issue (and it is), but that may make you uncomfortable. You may prefer to just stay out of it.

12034442_926942070700587_9160968192731309561_o

But what about Brielle? Will you care because of her? Will you help me fight for her legacy? Dr. Bootstaylor is a part of that. If it weren’t for him, none of you would know me or Brielle.

You don’t have to physically be in Atlanta to make a difference. Just talk about it. Share your outrage that this man has become a target, merely because he is a good man. Draw attention to the injustice circling Dr. B.

Dr. Bootstaylor wanted to help Brielle, he cared about her. Maybe that’s taken for granted, but for me? Brielle had a short amount of time here. And everyone who stood in her court and defended her, those people are precious to me. I will fight hard for those people. They loved my daughter. They valued her.

And all we, all I, have left is her memory and legacy. I’m not going to just throw that away, or turn a blind eye to another’s suffering, because it might make me or others uncomfortable.

It’s fundamentally wrong, no matter your personal or political beliefs, to let a good man be shot down and discouraged because he stood up for pregnancies like mine. Because he made other doctors jealous and uncomfortable.

12309998_960435197351274_3187715751078380470_o

What kind of people are we if we let this happen?

I can’t make any of you care, but I’m begging you to. I am begging you to recognize all of the good this man did for our sweet Brielle. I am begging you to help me stand up for him. Please, for a few days, just unite and join me in defending a man who gave Brielle her best chance.

Just Some of the Stories About Dr. Bootstaylor:

Introducing Dr. Bootstaylor

Family Centered Cesarean 

Brielle Has a Membrane!

What Happened In The Hospital (my hospitalization due to polyhydramnios)

Brielle’s Last Ultrasound

Part Two: Brielle’s Birthday Continued

Part Three: The Delivery